Statement Regarding Palestine Action
We were born out of frustration of not being heard through systematic racism, medical trauma and dismissal. We are deeply concerned about the ban of Palestine Action UK, a movement that is trying to prevent war crimes. As soon as you begin criminalisation of freedom of speech and fundamental rights then you know it will continue within other movements. Humanitarian groups have asked for the aid blockade to stop with no changes.
We find ourselves facing a system and government investing in war crimes whilst making detrimental cuts to disability benefits and leaving those already vulnerable in dire conditions.
We stand with those risking their freedom to stop the ethnically cleansing of Palestinians.
Free Palestine.
Global Accessibility Awareness Day
Global Accessibility Awareness Day (GAAD), celebrated annually on the third Thursday of May, is a powerful opportunity to raise awareness and drive action on digital access and inclusion. It can help with:
1. Promoting Digital Inclusion
Encourages companies, governments, and individuals to ensure websites, apps, and digital tools are usable by everyone, including people with disabilities.
Highlights the importance of accessible design in everyday digital experiences.
2. Raising Awareness
Educates people about the barriers faced by individuals with visual, auditory, motor, and cognitive disabilities.
Brings attention to the importance of assistive technologies like screen readers, alternative input devices, and captioning tools.
3. Driving Innovation
Inspires developers, designers, and product teams to create inclusive solutions.
Promotes universal design principles that benefit all users, not just those with disabilities.
4. Encouraging Policy and Practice Changes
Motivates organizations to adopt accessibility standards (e.g., WCAG 2.1).
Spurs updates to internal processes, procurement policies, and compliance protocols.
5. Fostering Empathy and Understanding
Provides real-life examples and simulations to help people understand what accessibility challenges feel like.
Promotes storytelling from disabled voices to humanize digital barriers.
6. Supporting Workforce Inclusion
Encourages inclusive hiring practices and accessible workplace tools.
Raises awareness about the importance of accessible training materials and job platforms.
International ME/Fibromyalgia Awareness Day
May 12 is observed worldwide as International ME/ Fibromyalgia Awareness Day. It's a time to recognize and support people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia, two often misunderstood and debilitating chronic illnesses that significantly impact quality of life.
💜 Raising Awareness on May 12
Wearing blue or purple, sharing stories online, lighting landmarks, and supporting advocacy organizations can help bring visibility to these often invisible illnesses.
💡 What Is Fibromyalgia?
Fibromyalgia is a chronic condition characterized by:
Widespread musculoskeletal pain
Extreme fatigue
Sleep disturbances
Cognitive issues ("fibro fog")
Sensitivity to touch, light, sound, or temperature
While the exact cause is unknown, it's believed to involve abnormal pain processing in the brain and nervous system. It often co-occurs with ME/CFS, which shares overlapping symptoms.
💙 How to Deal with Fibromyalgia
Managing fibromyalgia is a multifaceted approach. There's no cure, but symptoms can often be managed with a combination of strategies.
ME/CFS stands for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. It is a serious, long-term illness that affects multiple systems in the body, especially the nervous, immune, and energy metabolism systems. Here's a breakdown of what it involves:
Core Features:
Persistent, unexplained fatigue: Not improved by rest and significantly worsened by physical or mental activity.
Post-exertional malaise (PEM): A hallmark symptom where symptoms dramatically worsen after even minor exertion.
Unrefreshing sleep: Despite sleeping for long periods, patients wake up feeling tired or unrested.
Cognitive impairments: Often described as "brain fog"—problems with memory, focus, and processing information.
Orthostatic intolerance: Difficulty standing or sitting upright for long periods due to issues with blood pressure or heart rate regulation.
Additional Symptoms May Include:
Muscle or joint pain
Headaches
Sensitivities to light, sound, or chemicals
Digestive issues
Sore throat or swollen lymph nodes
Diagnosis:
There is no single test for ME/CFS. Diagnosis is based on:
Symptoms lasting at least 6 months
Ruling out other possible causes
Meeting clinical criteria
There is no cure, and treatments focus on symptom management:
Sensory Challenges and Events
Attending events with sensory issues due to a chronic illness can be overwhelming, but with the right strategies, it can become more manageable. Here are some common challenges and tips for handling them:
Common Sensory Challenges
Noise Sensitivity – Loud music, crowds, and overlapping conversations can be overstimulating.
Light Sensitivity – Bright lights, flashing lights, or screen glare may cause discomfort or migraines.
Temperature Sensitivity – Some chronic conditions make it hard to regulate body temperature.
Touch Sensitivity – Crowded spaces, tight seating, or certain fabrics can trigger discomfort.
Smell Sensitivity – Strong scents (perfumes, food, cleaning supplies) can cause nausea or headaches.
Tips for Managing Sensory Overload at Events
Plan Ahead
Choose quieter times to attend (e.g., early in the day or on weekdays).
Check if the venue has accommodations (quiet areas, seating options, sensory-friendly spaces).
Call ahead to ask about strobe lights, music levels, or fragrance-free policies.
Bring Sensory Aids
Earplugs or Noise-Canceling Headphones – Reduce overwhelming sounds.
Sunglasses or Tinted Glasses – Help with bright lighting or screen glare.
Comfortable Clothing – Soft, breathable fabrics and layers to adjust for temperature changes.
Essential Oils or Face Masks – Help block out strong odors.
Have an Exit Plan
Identify quiet spots or places to take breaks.
Park close to the entrance/exit if possible.
Go with someone who understands your needs and can help if you need to leave.
Communicate Your Needs
Let a friend, family member, or event staff know if you need accommodations.
Use a medical alert bracelet or card if necessary.
Take Care of Your Body
Stay hydrated and bring snacks if needed.
Rest before and after the event to prevent overstimulation.
Listen to your body and leave if symptoms worsen.
Why Chronic Illnesses Can Be Difficult To Recognise
Subtle and Varied Symptoms:
Chronic illnesses often have symptoms that are not immediately obvious or visible, which can lead to delays in getting a diagnosis.
Overlapping Symptoms:
Many chronic illnesses share common symptoms, making it difficult to pinpoint the underlying cause. For example, fatigue, pain, and digestive issues can be associated with various conditions.
Long Latency Periods:
The time between the onset of a chronic illness and the appearance of noticeable symptoms can be long, further complicating early detection.
Lack of Specific Tests:
Some chronic illnesses lack specific diagnostic tests, making it challenging for healthcare providers to confirm a diagnosis.
Psychological and Social Factors:
The emotional and social impact of chronic illness can also be significant, potentially leading to difficulties in recognizing and coping with the condition.
Fatigue:
Chronic illnesses can cause significant fatigue, which can be a major symptom that is often overlooked or misattributed to other causes.
Impact on Daily Life:
Chronic illnesses can disrupt daily life, leading to difficulties with work, relationships, and social activities, which can further complicate recognition and management.
Mental Health:
Chronic illness can also impact mental health, leading to anxiety, stress, and depression, which can make it harder to recognize and cope with the physical symptoms.
FND Awareness Day
It was five years ago I became bedridden with unexplained symptoms. The year before, I was travelling around the world solo, running a business and working out at the gym. I didn’t think I would get sick, people with chronic illnesses rarely do. But it was one of the worst years of my life. A sense of confusion, not belonging, bitterness towards the world and hoping for it to all go away.
I am #FNDAware
I was diagnosed with FND Functional Neurological Disorder. A neurological condition, one that is still underfunded and misunderstood. A common way of describing FND is that the brain sends the wrong signals to the nervous system. Although the government has announced investing in FND, there is still a long way to go.
Remember your feelings are valid and you are allowed to mourn. Unfortunately, there is still a lot of ableism and people who have never heard of the illness who get to decide on treatment, or lack of.
One day at a time.
Adjusting to Living with a Chronic Illness
Adjusting to life with a chronic illness is a journey—one that comes with emotional, physical, and lifestyle changes. Here are a few tips to help navigate this change in your life:
1. Acknowledge Your Feelings
It's completely normal to experience grief, frustration, anger, or sadness. Give yourself permission to feel these emotions and seek support when needed. There may be things you used to love, whether that’s hobbies or work which you can no longer carry out.
2. Educate Yourself
Understanding your condition can help you to make informed decisions about your health. Read reputable sources, join support groups, and communicate openly with your healthcare providers.
3. Prioritize Self-Care
Physical Health: Follow your treatment plan, get adequate rest, and maintain a balanced diet.
Mental Health: Practice stress management techniques such as meditation, therapy, or journaling.
Pacing Yourself: Learn to listen to your body and avoid overexertion.
4. Build a Support System
Surround yourself with supportive friends, family, and professionals who understand your journey. Online communities and local support groups can be valuable resources.
5. Adapt Your Daily Life
Make adjustments to your work, home, and social life to accommodate your needs. This may include using assistive devices, modifying your workspace, or setting realistic goals.
6. Advocate for Yourself
Don’t hesitate to communicate your needs to employers, family, and healthcare providers. Setting boundaries and speaking up about what you require can improve your quality of life.
7. Focus on What You Can Control
Rather than dwelling on limitations, find joy in the things you can do. Engaging in hobbies, creative outlets, or new activities can bring a sense of purpose.
Chronic Illnesses & Ramadan
Ramadan & Chronic Illnesses
People with chronic illnesses can find it hard to participate in religious/cultural events, but that doesn’t make them any less as a person. With Ramadan beginning it’s a reminder that you don’t need to ask anyone whether or not they are fasting.
Ramadan is the holiest month in the Islamic calendar, observed by Muslims worldwide as a time of fasting, prayer, reflection, and community. The fast is broken with a meal called Iftar, traditionally starting with dates and water, followed by a larger meal. The pre-dawn meal before fasting begins is called Suhoor.
Who is Exempt from Fasting?
Certain people are exempt from fasting, including:
Children who have not reached puberty
The elderly and those with chronic illnesses
Pregnant and nursing women (if fasting is difficult)
Travellers
Menstruating women (they make up the missed fasts later)
What you can do instead?
Give to charity
Volunteer
Increase your knowledge
We recommend speaking to your doctor and local Imam about your circumstances and ask them for advice. You also know your body best.
Ramadan Mubarak to all.
Life After Gaza: Surviving, Advocating & Moving Forward
Gaza My Home
Living in Gaza is unlike anywhere else in the world. For over three decades, it was my home—my place of work, my community, and where I built my life. The challenges were constant, from power shortages to movement restrictions, but so was the resilience. Gaza is filled with talented, ambitious people who strive to create opportunities despite the odds. Working at Gaza Sky Geeks, I saw firsthand how young people used technology and freelancing to break past physical barriers and access global markets. Yet, no matter how much we achieved, the reality of the blockade always loomed over us, reminding us that our futures were never fully in our control.
Disabilities in Gaza
During the last war, I was responsible for over 45 immediate family members, including my three children and elderly parents. My father, who is in a wheelchair, requires constant care. We were displaced multiple times across the strip, and as the sole breadwinner, I had to provide shelter, food, water, and whatever necessities I could find. We survived over seven months of everything the world witnessed online, but then I had to make the hardest decision of my life: leaving Gaza. I wasn’t able to save everyone—only 10 out of the 45 family members I was responsible for made it out. A week later, the borders were completely closed.
I am one of the fortunate ones who managed to escape, but with that comes a burden I never anticipated: survivor’s guilt. Every day, I think of my family, friends, colleagues, and loved ones still trapped in impossible conditions. The guilt manifests in unexpected ways—hesitation before sharing good news, feeling like I don’t deserve a fresh start when others are suffering, and the relentless question of whether I am doing enough to help those left behind. I face waves of deep depression, weakness, and helplessness, struggling to find meaning in this new reality.
Image Credit: Saed Habib
Advocacy & Mental Health
Since leaving, I have taken on a new role: advocate. I use my voice to bring attention to Gaza’s ongoing struggles, especially in the tech and business sectors. I push for more opportunities for Palestinians in Gaza, the West Bank, and those displaced in Egypt and beyond. This advocacy work, however, takes a toll on my mental health. Every conversation about Gaza reopens wounds that have barely started to heal. The weight of carrying the stories of those who cannot speak for themselves is heavy, and burnout is a real concern.
One of the most powerful tools in advocacy today is social media. Platforms like Facebook, X, LinkedIn, and Instagram allow us to amplify Palestinian voices and counter misinformation. But the constant exposure to distressing images and news can be overwhelming. While social media is a lifeline for spreading awareness, it is also a double-edged sword, contributing to anxiety and emotional exhaustion. Balancing advocacy with self-care is an ongoing struggle—one I am still learning to navigate.
A topic that often gets overlooked in discussions about Gaza is the experience of people with disabilities. The war has dramatically increased the number of individuals with disabilities, whether from injuries, trauma, or lack of medical care. Even before the war, Gaza was a difficult place for people with disabilities, with limited accessibility and resources. Now, with infrastructure destroyed and medical aid restricted, their struggles are even more severe. Advocacy for Gaza must include them, ensuring that any rebuilding efforts are inclusive and that they are not left behind.
As for my own mental health, it is a work in progress. The trauma of war, displacement, and the uncertainty of what comes next weigh heavily on me. Some days, I am focused and driven, determined to make an impact. On other days, the sheer magnitude of loss feels paralyzing. Therapy is not always accessible, so I rely on community support, self-reflection, and advocacy as a form of healing. But healing is not linear, and I remind myself that it is okay to take things one step at a time.
Healing
So, what’s next for me? I am exploring different paths, from remote work to potential relocation opportunities. I am committed to continuing my advocacy, helping Palestinian professionals connect with global opportunities, and ensuring that Gaza’s story is not forgotten. My goal is to find a way to balance personal healing with meaningful work—work that not only supports my family but also contributes to a better future for my people.
For anyone reading this, especially those who have supported Gaza from afar: your voice matters. Your engagement matters. Whether through social media, donations, or policy advocacy, every action counts. Gaza is more than a conflict zone—it is home to people with dreams, talents, and limitless potential. And as long as we keep telling our stories, those dreams will not be forgotten.
Written by Saed Habib
A New Year, Same Chronic Illness
Navigating your mental health while managing a chronic illness can be particularly challenging but also deeply rewarding as you discover strategies that enhance your well-being. Here are some thoughtful ways to approach it in the new year, or you can completely ignore this article, we know how it is:
1. Set Realistic Goals
Prioritize Self-Compassion: Accept that your energy levels (spoons) and abilities may vary. Set flexible goals that accept your limits.
Focus on Small Wins: Celebrate even small achievements to maintain motivation and a sense of progress.
2. Build a Support Network
Connect with Others: Join support groups, either in-person or online, for people with similar conditions. Shared experiences can reduce feelings of isolation.
Lean on Loved Ones: Communicate openly with family and friends about your needs and feelings or not. If you feel triggered by opening up to people you know you can always find people who have similar illnesses and experiences.
3. Integrate Mindfulness Practices
Mindfulness Meditation: Regular practice can help reduce anxiety, depression, and pain sensitivity.
Deep Breathing Techniques: Useful during moments of stress or when dealing with symptoms.
4. Prioritize Therapy
Seek Professional Support: Therapists, particularly those specializing in chronic illness, can offer tools to navigate emotional challenges.
5. Cultivate a Routine
Balance Activity and Rest: Develop a routine that includes time for work, self-care, and leisure without overdoing it.
Sleep Hygiene: Maintain consistent sleep patterns to improve mood and energy levels. (we know this can be tricky)
6. Practice Gratitude
Journaling: Reflect on positive moments or things you’re thankful for each day.
Shift Focus: Recognizing small joys can help counterbalance the challenges of chronic illness.
7. Engage in Creative Outlets
Express Yourself: Writing, art, or music can be therapeutic and help process emotions.
Try Something New: Explore hobbies that align with your current abilities and interests. Or research a random topic that is interesting to you.
8. Stay Physically Active Within Your Limits
Adapted Exercise: Gentle movement like yoga, tai chi, or walking can boost endorphins and reduce stress. But if it means gentle exercises then do that, it’s all about what works for your body.
Physical Therapy: If applicable, consult a professional for safe exercises tailored to your condition.
9. Educate Yourself
Understand Your Condition: Knowledge can empower you to advocate for your needs and make informed decisions.
Learn Coping Strategies: Research tools and techniques that others with similar conditions have found helpful.
10. Plan for Challenges
Create a Safety Net: Identify triggers or difficult situations and have a plan to address them (e.g., relaxation techniques or reaching out for support).
Allow Flexibility: Be gentle with yourself if plans need to change due to your health.
11. Celebrate Progress
Acknowledge Growth: Look back at how far you’ve come, even if the journey is ongoing.
Reward Yourself: Treat yourself for milestones, no matter how small.
Navigating mental health alongside a chronic illness is an ongoing process. Take it one step at a time, and remember that seeking help is a sign of strength, not weakness. Starting the new year with a focus on self-care and intentionality can set a positive tone for the months ahead.